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What to expect

Your child’s care pathway 

 

This is a plan of what to expect while your child is under the care of the North Thames Cleft Centre.  It identifies the appointments, tests, assessments and operations your child will need.  As each child is different, we may need to adjust this plan from time to time but the following is a rough guide for those children with clefts of the lip and palate.

 

 

 

Your child's age 

What to expect

Birth

Outpatient appointment - discuss operation

Birth - 6 weeks

Outpatient appointment - hearing test

3 - 6 months

Admission to hospital for lip repair

8 - 12months

Admission to hospital for palate repair

3 months after operation

Outpatient appointment - post op and hearing test 

12-15 months

ECIC (Early Communication in Cleft) Group

18 months

Outpatient appointment - Speech and Language Therapy assessment

2 years

Outpatient appointment - Cleft clinic

3 years

Outpatient appointment - Speech and Language Therapy assessment

4 years

Outpatient appointment - Cleft clinic

5 years

Outpatient appointment - Clinical review

7.5 years

Outpatient appointment - Cleft clinic

10 years

Outpatient appointment - Clinical review

12.5 years

Outpatient appointment - Cleft clinic

15 years

Outpatient appointment - Clinical review

16 years

Outpatient appointment - Cleft clinic

20 years

Outpatient appointment - Clinical review

Children with clefts of the lip or palate only will need to be seen less frequently.

These are just the planned appointments and we are happy to see you at any time if you have concerns or worries.  If individual members of the team need to see your child more regularly, we will arrange these appointments for you.  If your child is likely to need several assessments at the same age, we will do our best to arrange them for the same day.


 

Patient Information Leaflets (Great Ormand Street Hospital)

 

http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/cleft-lip-repair/

http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/cleft-palate-repair/

http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/buccinator-flap-operation/

http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/pharyngoplasty/

http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/food-suggestions-following-cleft-surgery/

http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/alveolar-bone-grafts/

http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/cleft-lip-and-or-palate-and-anaesthesia/