This is a plan of what to expect while your child is under the care of the North Thames Cleft Centre. It identifies the appointments, tests, assessments and operations your child will need. As each child is different, we may need to adjust this plan from time to time but the following is a rough guide for those children with clefts of the lip and palate.
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Your child's age
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What to expect
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Birth
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Outpatient appointment - discuss operation
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Birth - 6 weeks
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Outpatient appointment - hearing test
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3 - 6 months
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Admission to hospital for lip repair
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8 - 12months
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Admission to hospital for palate repair
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3 months after operation
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Outpatient appointment - post op and hearing test
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12-15 months
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ECIC (Early Communication in Cleft) Group
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18 months
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Outpatient appointment - Speech and Language Therapy assessment
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2 years
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Outpatient appointment - Cleft clinic
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3 years
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Outpatient appointment - Speech and Language Therapy assessment
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4 years
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Outpatient appointment - Cleft clinic
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5 years
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Outpatient appointment - Clinical review
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7.5 years
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Outpatient appointment - Cleft clinic
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10 years
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Outpatient appointment - Clinical review
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12.5 years
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Outpatient appointment - Cleft clinic
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15 years
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Outpatient appointment - Clinical review
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16 years
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Outpatient appointment - Cleft clinic
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20 years
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Outpatient appointment - Clinical review
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Children with clefts of the lip or palate only will need to be seen less frequently.
These are just the planned appointments and we are happy to see you at any time if you have concerns or worries. If individual members of the team need to see your child more regularly, we will arrange these appointments for you. If your child is likely to need several assessments at the same age, we will do our best to arrange them for the same day.
Patient Information Leaflets (Great Ormand Street Hospital)
http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/cleft-lip-repair/
http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/cleft-palate-repair/
http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/buccinator-flap-operation/
http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/pharyngoplasty/
http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/food-suggestions-following-cleft-surgery/
http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/alveolar-bone-grafts/
http://www.gosh.nhs.uk/medical-conditions/procedures-and-treatments/cleft-lip-and-or-palate-and-anaesthesia/
