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Your child’s care pathway

This is a plan of what to expect while your child is under the care of the North Thames Cleft Centre.  It identifies the appointments, tests, assessments and operations your child will need.  As each child is different, we may need to adjust this plan from time to time but the following is a rough guide for those children with clefts of the lip and palate.

Your child's age 

What to expect

Birth – 3 months

Regular contact with Clinical Nurse Specialist

Birth – 3 months

Outpatient appointment

3 - 6 months

Admission to hospital for lip repair

7 months

Hearing test (palate only)

9 – 13 months

Admission to hospital for palate repair

3 months after operation

Outpatient appointment - post op cleft clinic (and hearing test)

12-18 months

ECIC (Early Communication in Cleft) Workshop for parents

2 years

Outpatient appointment

Speech and Language Therapy assessment

3 years

Outpatient appointment

Speech and Language Therapy assessment

5 years

Outpatient appointment - Clinical review

7.5 years

Outpatient appointment

10 years

Outpatient appointment - Clinical review

12.5 years

Outpatient appointment

15 years

Outpatient appointment - Clinical review

17.5 years

Outpatient appointment

20 years

Outpatient appointment - Clinical review

20 years

Outpatient appointment and appointment with Geneticist

 

Children with clefts of the lip or palate only will need to be seen less frequently.

These are just the planned appointments and we are happy to see you at any time if you have concerns or worries.  If individual members of the team need to see your child more regularly, we will arrange these appointments for you.  If your child is likely to need several assessments at the same age, we will do our best to arrange them for the same day.